tag:blogger.com,1999:blog-2811189992135134605.post164102154073886194..comments2024-01-24T09:55:51.044-06:00Comments on Elvis Sightings: When a mother says something works...JoyMamahttp://www.blogger.com/profile/15073328328434957851noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2811189992135134605.post-24098521418423442982010-03-01T10:47:01.596-06:002010-03-01T10:47:01.596-06:00I have removed a comment from a purveyor of questi...I have removed a comment from a purveyor of questionable genetic testing for gluten sensitivity, linking to a site that requests donations in the complete absence of any attempt to demonstrate non-profit legitimacy. Note that, while I do not pre-moderate comments at this point, I will cheerfully remove post-hoc any such product-hawking, alt-med or otherwise.JoyMamahttps://www.blogger.com/profile/15073328328434957851noreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-54476868959004143862010-02-28T19:14:08.079-06:002010-02-28T19:14:08.079-06:00JoyMama
Great post! Everything you said makes so ...JoyMama<br /><br />Great post! Everything you said makes so much sense.<br /><br />Truly, special dieting is not for the faint of heart, and if I didn't feel it was benefiting C in some way, I'd be done with it lickity split. Who needs more complications?<br /><br />What I wish is that there was more guidance from reliable and trustworthy resources (NOT Ms. McCarthy) for those of us that are doing it and seeing something positive. I often feel like I'm alone in my journey, despite that there are other parents doing it -I just don't trust other parents for guidance. <br /><br />Anyway thank you for writing on this topic with a sound and reasonable voice.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-80684559272728893482010-02-28T09:54:08.568-06:002010-02-28T09:54:08.568-06:00I had to delete my second comment because I gave w...I had to delete my second comment because I gave wrong direction to my posts. While I'm here, excellent choice of title for this post, JM. <br /><br />I reviewed both craniosacral treatment (JM and I interacted on that topic early in our awareness of each other). My blog can be searched through a lijit widget in the right column. I also reviewed ABA and many aspects of 'sensory' treatments. Not being a parent of a child with a diagnosis - take my opinions for what they are worth (to you). <br />(more from) BRatKAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-20396761492184458342010-02-28T09:28:25.702-06:002010-02-28T09:28:25.702-06:00This comment has been removed by the author.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-23384835297081519402010-02-28T08:06:32.765-06:002010-02-28T08:06:32.765-06:00Hello friends -- thanks for the positive feedback ...Hello friends -- thanks for the positive feedback so far! I'm breathing something of a sigh of relief to have positive comments from families where GF (K) or CF (Chelli) or both (Elizabeth) are being used. I appreciate it.<br /><br />BRatK - power & control issues on the part of parents - I agree, deeply woven in. May need to address that in my at.least.however.many.<br /><br />Elizabeth - I'm afraid we've presented on all the alternatives we're going to do in seminar. There are obviously a lot of them, we could have done more! The one in your list that I can speak to personally is craniosacral -- do a quick search on Elvis Sightings and you'll find several posts on our experience with it. I think I'll need to touch on that experience with my next alternative post. I surely don't want to give the impression that I am righteously opposed to anything with a hint of the alternative about it, 'cause we've been there too.JoyMamahttps://www.blogger.com/profile/15073328328434957851noreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-43774354392620250792010-02-27T22:44:31.698-06:002010-02-27T22:44:31.698-06:00As always, compelling and well-said.
We have be...As always, compelling and well-said. <br /><br />We have been GF/CF for over two years, but began with eliminating dairy while I was nursing all three of my children who all exhibited colic and/or eczema while nursing. It's been an interesting journey with all three--one on the spectrum and two not. All three have been sensitive to casein (or lactose, who knows really?) while nursing; all three have developed eczema in toddlerhood with the introduction of milk into the diet, and all three exhibited ear infections when they drank "too much" milk. (The amounts with each child varied significantly.) <br /><br />Also, their first cousin is sensitive to milk and has horrible eczema because he continues to consume casein.<br /><br />There must be connection in this case, and still I say until the "gut" is healed, we'll never know how many nutrients are actually absorbed, and eliminating gluten and casein calms the gut in most people so I plan to continue.<br /><br />I do wonder if the following treatments are being evaluated in your class: Interactive Metronome; EMDR; music therapy, ie The Listening Program or Vital Sounds; or Craniosacral Therapy/chiropractic.<br /><br />Not trying to bug you, but just curious...Elizabeth Channelhttps://www.blogger.com/profile/03694334658055229350noreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-28410211186425771112010-02-27T21:12:00.177-06:002010-02-27T21:12:00.177-06:00JoyMama,
Loved your post! I feel that the GFCF die...JoyMama,<br />Loved your post! I feel that the GFCF diet is beneficial to some people with autism, just as it would be beneficial to some people without autism. My son is casein-free, but only because he tested positive for an allergy to it. Has it helped to remove casein from his diet? Yes. Does it make some of his autistic behaviors less noticeable? Yes, but it may just be because, as you said, he just feels better. I don't know. I do think that if a parent chooses the GFCF diet (or any diet), they should do so with the counsel of a dietician or physician.Chellihttps://www.blogger.com/profile/07536775770500659691noreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-46514885865665678112010-02-27T19:34:46.110-06:002010-02-27T19:34:46.110-06:00EXCELLLENT post !
We are GF owing to a blood work ...EXCELLLENT post !<br />We are GF owing to a blood work that shows R has allergens - but thankfully it showed nothing against the C - which is R's main love - shredded cheese is desert after every dinner and I am so thrilled he can have it <br />There is a ton of guit <br />Karyn Seroussi has super intentions - I really think - but I dont think the GF CF diet works for all Auties <br />Even I became GFCF - as R continued to nurse at 2 - I wrote to Karyn and she was nice enough to answer - but she recommended that we stop nursing as breast milk had the opiates <br />I know she meant well but I did not take her advice as R was already under so much stress and nursing was one of the major sources of comfort for himFloortime Lite Mamahttps://www.blogger.com/profile/07988840423227903784noreply@blogger.comtag:blogger.com,1999:blog-2811189992135134605.post-76644425042208400222010-02-27T18:57:12.131-06:002010-02-27T18:57:12.131-06:00At.least. *wink*
No matter how many more posts ...At.least. *wink* <br /><br />No matter how many more posts you turn-out, I.will.stay.tuned.in. <br /><br />Outstanding work, JM! <br /><br />"I'm not particularly convinced at this point that such sensitivities have any special causal effect as far as autism goes." I'll sign that, too. <br /><br />My money, were I to spend it, is on a neural cause. By stating: "The existence of a gastrointestinal disturbance specific to persons with ASDs (eg, “autistic enterocolitis”) has not been established." - they promotional physiological explanation is not credible. <br /><br />(Plug for my top post and the link to a video series on the brain - in which causes of autism are discussed.)<br /><br />Your statements regarding the reasons parents choose the diet are cogent. I want to interject the idea of a psychological need to control some part of a life circumstance so very beyond a parent's control - what do you think? For some parents, maybe. The line might not be fine between empowered and controlling. <br /><br />Potential benefit is that the parent is assured they have tried everything. Potential harm is that the parent feels a failure when the diet isn't effective for curing the child's autism. Oh, I guess the harm is just in terms of the child? Not. <br /><br />For while the discussion is about the child there is no leaving out the parent. <br /><br />Again, my sincere compliments and my profound admiration. BRatKAnonymousnoreply@blogger.com