Showing posts with label fizzy juice. Show all posts
Showing posts with label fizzy juice. Show all posts

Monday, February 1, 2010

Hitting the Bottle

This post is in the interest of parental self-protection.

If Joy ever comes to visit you, and catches sight of a bottle similar to this in your home...


... and starts excitedly making a hand-sign that looks like this:


THIS is what she actually gets to have, when we celebrate a special occasion. Like last night for my birthday, when she saw the bottle & stem-glasses come out (she gets an open plastic cup now) and was "more"-signing so enthusiastically I thought she was gonna hyperventilate.



Kristian Regale Apple-Lingonberry fizzy juice.

Please make a note of it. Thank you.

Friday, September 11, 2009

9/11/2008 - 9/11/2009 and beyond

It's been an entire year...

since we last witnessed a Joy-seizure.

Break out the fizzy juice!

Wednesday, December 31, 2008

Auld Acquaintance, New Acquaintance

Happy last-few-hours-of-2008!

It's been almost exactly half a year since I asked "Is this thing on?" as I introduced Joy to the blogosphere in my very first Elvis Sightings post. Now here we are, six months and 100 posts later, with a conversation and a community well beyond what I had ever imagined. As I said at the time,
I'm writing mostly for myself, but also for family and friends already met, and also those not met yet. I hope there will be conversation, because I like conversation, but if not, that's OK too.

Well, the conversation has been more than OK. I owe a major debt to Maddy of Whitterer on Autism, for discovering Elvis Sightings and introducing me to her extensive readership. (Niksmom and Osh followed me over from there, I believe.) Bedtime ritual posts led me to jesswilson at diary of a mom, and Rhemashope at Autism in a Word, whose precious daughters have plenty in common with mine. A discussion of the Scottish poet Robert Burns (who introduced, if not actually penned, the Auld Acquaintance poem that we all mumble through on New Year's Eve) opened the doors to Therextras and a lively ongoing conversation with Barbara/BRatK. And then there's Mama Mara, always on the edge and also right around the corner. And many more, and I hope many more yet to come!

Then there are Joy's family members, both the commenters and the lurkers. And the wider lurking community from church and friends far and near and goodness knows who else. Thank you for keeping up with us, and all the prayers and well wishes. Your support means the world to us.

And then there are those who reach Elvis Sightings through search engines. Some find topical tidbits (linear nevus sebaceous syndrome, for example, or craniosacral therapy). Many others are in search of the other kind of Elvis sightings, or vampire encounters, or Santa Claus. Or "how bad is fizzy juice," or whether Handy Manny and Kelly really have something goin' on the side. Welcome all -- even if you don't find what you expected here, we'll raise a glass in your honor anyway. Elvis and Santa and yes, even Edward, can be real for you too, if you clap loudly enough or something...

You know, my mother and her mother both had/have two lovely traditions that I never did manage to latch onto for myself: personal journaling and regular family letters. Suddenly at the age of forty, by taking up Elvis Sightings, I've discovered a way to do aspects of both, with a lovely connected conversational twist. It's been a treat so far!

Finally, I must also acknowledge that I've actually only written, well, ninety-eight posts here. The other two are courtesy of my co-blogger, co-parent, partner in marriage and all sorts of other shenanigans, JoyDad himself.

So together we'll pour the fizzy juice not too long from now (it'll be midnight somewhere in the world, if not necessarily here) and raise a glass to auld acquaintance and new. Blessings to all in the new year, and we'll see you in the next 100 posts!

Sunday, October 12, 2008

Break Out the Fizzy Juice!

Last night we held a small celebration, marked with butterscotch pudding and raspberry-apple fizzy juice (the kind that uses a plastic arch over the bottle cap to make it look like a champagne cork).

Yesterday officially marks a full month since Joy's last big seizure!

We came so close, several times. We almost got to a seizure-free month as April became May, but then had a whopping 7-seizure day to end that happy string. Then we almost made it through August, but not quite.

We almost could have counted September, because the last big seizure that actually interrupted her day was August 31. But then we heard her seizing in her crib after she went to sleep for the night on September 11.

This time, though, it's really official.

We baked cupcakes this morning, to take to daycare tomorrow. (When did cake-mixes boxes stop including instructions for how many strokes to beat by hand?) Rose cracked the eggs and laid out the cupcake holders in the tins, and Joy did a bit of stirring.

I should note that we're quite sure Joy continues to have ongoing subclinical seizures pretty much all the time. This doesn't mean the seizures have gone away, by any means.

Still, it is absolutely fantastic to have had an entire month in which her days have not been interrupted by the big blue-lipper kind of seizure. Actually, that's been more like a month and a half, since the September 11 one was in her sleep.

Woohoo! Anyone for two months?