Last night we held a small celebration, marked with butterscotch pudding and raspberry-apple fizzy juice (the kind that uses a plastic arch over the bottle cap to make it look like a champagne cork).
Yesterday officially marks a full month since Joy's last big seizure!
We came so close, several times. We almost got to a seizure-free month as April became May, but then had a whopping 7-seizure day to end that happy string. Then we almost made it through August, but not quite.
We almost could have counted September, because the last big seizure that actually interrupted her day was August 31. But then we heard her seizing in her crib after she went to sleep for the night on September 11.
This time, though, it's really official.
We baked cupcakes this morning, to take to daycare tomorrow. (When did cake-mixes boxes stop including instructions for how many strokes to beat by hand?) Rose cracked the eggs and laid out the cupcake holders in the tins, and Joy did a bit of stirring.
I should note that we're quite sure Joy continues to have ongoing subclinical seizures pretty much all the time. This doesn't mean the seizures have gone away, by any means.
Still, it is absolutely fantastic to have had an entire month in which her days have not been interrupted by the big blue-lipper kind of seizure. Actually, that's been more like a month and a half, since the September 11 one was in her sleep.
Woohoo! Anyone for two months?
11 comments:
Congratulations! Praying for another seizure free month!
wow, what a wonderful milestone! :)
Yay!! I am so happy for all of you, including Joy!! Another challenge to live in the moment...just savor and enjoy having had the month free without trying too hard to figure out why or worry about when the "freedom" will end!! And the celebration feast sure sounds tasty to me!!
Now, since when do you need to follow a recipe to know how much to beat the batter by hand? You are such a great cook with such good instincts that I'm sure you were able to do it just right without needing to read about it! LOL! Too bad I wasn't able to be there to taste-test the cupcakes! I'm sure that Rose and Joy did that job very well, though!
-AuntieS
Raising my coffee in a toast to you all! Woo Hoo! Prayers for continued freedom from the awful blue lippers!
YAY!!!!!!!!!
Excellent news! C has been seizure free for 3 years now! (hope i havent jinxed it by saying that!)
a journey of a thousand miles starts with one seizure free month .. or something like that .. congratulations .. and wishing you many many more ahead
Hooray!!Hoory!!Hooray!!
I swore I would stay off the computer (am really sick and trying to rest before vacation), but I just had to peek at yours. I'm so glad I did! Yay!!!! Kisses to all of you.
hooray! let's go for 2 mos.!
there's my perfect excuse to go get a cupcake. =)
The cupcakes were great! The daycare kids loved them. Loved the different colors to pick from also.
We all clapped in celebration of the seizure free month.
The kids may not totally understand what a seizure is, but they do know that they aren't fun for Joy.
If we go another month, I think a full out party is in order!
Lynda
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