As of this Thursday morning, it had been 1554 days.
But no longer. On Thursday morning Joy had a seizure that was powerful enough to knock her down. I'm pretty sure I missed the actual seizure itself, which must have happened while she was on the couch with her iPad while I was whirling around packing bags and wraps for school. But when I got her up to put on her coat and go to school, she tripped over her boots and fell to the floor. She fell again in the driveway a minute later, and then she was very sleepy and out-of-things for about an hour. Clearly a seizure event with the sort of post-seizure sequence that we used to see all the time.
We've consulted with her neurologist, survived a blood draw, bumped up one of her med doses (which hadn't been changed since the seizures went away).
So the count has started over again. Now we're on Day 2 since the last seizure.
It would sure be nicer to have it be Day 1556.
5 comments:
Oh, honey, I'm sorry! I wish I could say I can't relate or understand, but... :-(
Sending good thoughts and seizure-free vibes!
Oh, dear. I'm sending good thoughts your way.
Sorry to hear. Strength for all, and understanding.
Thanks so much, maternalinstincts, Suze, & Cogitus. We're into Day 4 now, and looking forward. It's good to have people pulling for us. :-)
Pulling here, too.
I just had a conversation with a mom of a toddler about triggers of seizures. In particular, she asked about swinging. I opined that other reasons are attached to an event when the child has outgrown their med dose. I don't know how anyone keeps ahead of that issue.
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