Showing posts with label trichotillomania. Show all posts
Showing posts with label trichotillomania. Show all posts

Monday, September 26, 2011

Wide Open Spaces

The pace of my blogging continues to gravitate toward a more widely-spaced output. The to-do list feels long. I keep hoping that I'll move into a good rhythm with the school year -- maybe I just haven't gotten there yet.

Joy got a brand-new wide-open space herself a week ago at school... she's now missing a front-tooth! It's been quite a while since the bottom two came out, almost a year now, so I guess we're due. This one came home a day later than it actually came out. In fact, the news came a day late too! The tooth had disappeared right at the end of a rougher-than-normal day, after Joy's school staff had already filled out her daily log, and it got missed in the brief verbal "how was her day" as well. Her SEA had not been back in the building a minute before I noticed that gaping new hole!


I figured she had maybe swallowed the tooth, and was giving her staff enough of a run for their money that it had maybe gone unnoticed, seeing as how she wouldn't have made a fuss about it... but Tuesday morning we got a belated tooth-loss report as soon as we came in the school door, words-tumbling-over-one-another apologetic! And then by the time I picked her up Tuesday afternoon, the missing tooth had been found as well, and was stowed in a little plastic treasure chest in her backpack.


Doesn't that look like a first-grade smile, though?

The other wide-open space we've been dealing with lately is one that dates back to the beginning of the summer, when we starting having another bout of hair-pulling-out. Over the course of a week or two, Joy managed to create a noticeable totally-bald patch along her nevus-removal scar, even after I gave her a short haircut to make the hair harder to grab. This time I opted not to go the full buzz-cut route, planning to even things up through future haircuts.

But before we got as far as haircutting, another space-within-a-space opened up. I think it might have started as a mosquito bite right on the scalp-scar, that Joy scratched open the way she generally does with mosquito bites. Long after the summer bites on her legs healed, the one on her head was still open. For a while she semeed to be scratching it for stimmy-delight, then it turned into a self-injury frustration lash-out thing. (What, I can't get through that forbidden door? Well, SCRATCH MY SCAR!)


Scratch after scratch, the start of the school year was approaching and the wound was getting bigger instead of smaller. Complicating the matter was our long-standing experience that band-aids only draw further attention to any boo-boo, by encouraging picking. So we knew that putting on a band-aid would just make things worse.

Except -- the other thing that we might have remembered is that Joy's mixer-board switches do tend to flip between settings, from time to time. After a few days of school and a Labor Day weekend full of scab-scratches, I finally decided that trying a band-aid couldn't be any worse.

She left it on for a couple of days. Long enough to begin a cycle of some healing... it's been three steps forward, two steps back since then, including a resumption of unwillingness to wear the band-aid, but we've been making progress. Perhaps by the time the hair grows back, the wide-open space will have closed again for good!

Thursday, April 2, 2009

String... String... STRING!!!

When my brother Uncle Schnirelmann and I were kids, we had a silly little in-joke game called "string."

I'm not sure how it started, but it involved feigning a fixation on string. Think zombies moaning for "Braaains!" Our signature moan went along the lines of: "String... striiiing...STRIIIIING!!"



Then we'd greedily grab and pretend to obsessively play with whatever piece of string triggered the joke.

Well, the joke's on me, my friends.

Joy's hair-pulling stimmy activities didn't come out of nowhere. The dimmer-switch has actually been sliding for quite a while.

It started with dolly hair, as far as I can tell. My Little Ponies. American Girls. Barbies. Most of which, by the way, belonged to Rose. Miss Rose has been generous with the ponies, but the others have been rather a cause of contention.

Then it spread to other stringy things. She started picking up hair and fuzzy bits from the carpet, and gravitating to toys with strings. Here's what her OT reported on the subject on March 18:
Joy was really drawn to stimming activities today. It seems like every where there was a string for her to twist in her fingers. It was me against 10,000 pieces of string!

String for blinds
The hair-pulling seems a natural extension (though I guess you can't wear extensions if you don't have any hair there to begin with...) Here's from Lynda's daycare report yesterday:
She was putting a lot of energy into looking for strings. I took a couple toys out of the room that have strings. Ones she knows are always on the shelf. Even if I turn the toy so the string isn't visible, she knows it's there and will pull the toy out to get to the string. I tried substituting a squish ball thingy that [the OT] had brought for her a while back. She would play with it a few minutes, then go back to tracking down string. A couple good clumps of hair came out when strings weren't readily available.

Joy's been wearing a little pink hoodie-sweatshirt today, to pretty good effect so far. I so very much appreciate all the words of wisdom and encouragement on last night's post! It all feels somewhat more manageable this morning. My best guess is that the dimmer switch will eventually slide the other direction, as it has with many other less-than-desirable behaviors and stimmies.

I still see a potential buzzcut looming in the future, though -- if not as a preventative approach, then in service of evening things up when the hair starts to grow back in! Pixiemama, I don't "do" Facebook, but I bet your shaved head was adorable! Auntie RatM has even more extensive shaved-head/buzzcut experience. Makes her more aerodynamic and all.

Hey brother mine: "String... striiiing...STRIIIIING!!"

Wednesday, April 1, 2009

Not Alopecia - Trichotillomania!

[UPDATE: Barbara set me straight on the terminology. It's not alopecia -- it's trichotillomania. Two bonus syllables, even!]

Joy's cute new haircut did not stop the hair-pulling.

She's yanking it in clumps now. It's her new favorite stimmy.

Here's how it looks from the top:

Alopecia

Any blogospheric wisdom would be appreciated. Stocking cap? Buzz cut? Bald is beautiful?