Tuesday, September 29, 2009

Linear Nevus Sebaceous Syndrome

There's a new information site and support group in town.

(Well, OK, in town virtually speaking.)

Linear nevus sebaceous syndrome is a rare neurocutaneous condition about which information has been awfully hard to find, and the lack of a dedicated support group has left folks (like Joy-parents) with no place to turn.

Behold, LNSS Connections.

And its corresponding LNSS-Connections Yahoo! Group.

Comments, suggestions, etc. welcome!

1 comment:

mama edge said...

COOL! You rock, JoyMama!