Showing posts with label bedtime. Show all posts
Showing posts with label bedtime. Show all posts

Monday, December 19, 2011

Songs of the Season, Part 1

As the introduction to our annual Christmas newsletter this year pointed out, "the local oldies station has switched to 'all Christmas music, all the time.'" Christmas, more than any other holiday, comes with its own musical soundtrack.

The JoyFamily appreciates the holiday soundtrack -- JoyMama in particular was simply delighted with the Messiah singalong at church on Sunday! (Rose, in contrast, left the sanctuary at the first chorus, claiming that the singing and instruments were painfully loud.)

We have our own songs going on this season too.

I've written before about Joy's bedtime routine, that involves filling in the blanks for Rock-A-Bye Joy and Twinkle, Twinkle, with Joy filling in the words. In recent weeks, these songs have gone to a whole new level. They've become an interactive people-play, where Joy decides what will be rocked or twinkled and when it will happen.

It looks something like this: she'll bring me her stuffed penguin and cuddle up to me with penguin in her arms. Then she'll rock slightly back and forth, saying something like "WOH-woh." Which is my cue to sing:
Rock-a-bye PENGUIN, on the tree top,
When the wind blows...

... and Joy fills in some "peh-peh" word so I can continue
PENGUIN will rock!

The funnier the item, the better the Joy-giggles. One of my favorites has been the plastic tomato slice:

Twinkle, twinkle, little TOMATO!!

But wait, there's more! JoyDad and Joy then added a variation where Joy points to her own body-parts, with a one-finger point even, to direct him into verses such as:

Rock-a-bye KNEE, on the tree top,
When the wind blows, BELLY-BUTTON will rock!

The most recent variation has to do with a home-made board book dating back to Joy's days in daycare and early-childhood ed. The book has photos of people close to Joy, plus useful shots representing daycare, home, mealtime booster-chair, potty, etc. When Joy brings this book with a cuddle and a "WOH-woh," and starts flipping to the desired pages, we get something like:

Rock-a-bye GRANDMA, on the tree top,
When the wind blows, POTTY will rock!

I've got a few more musical offerings to share before Christmas rolls around next week. Meanwhile, though, I'm off to the Solidarity Sing-Along at the Capitol, something I've written about here and elsewhere. Today's singalong of holiday-themed protest songs will end up being a test of a set of new restrictive rules designed to quash protest, this regular protest in particular. Might be something of a showdown today, though it sounds as if the administration isn't going to try any mass arrests. I'm all dressed up respectable-like just on the off chance, though!

Keep singing, and I'll report more Joy-family song-related goodies in days to come...

Monday, May 23, 2011

The Sound of "Nigh-Night"

Just recently I shared with you an account of the "Nigh-Night" game, where the interactive people-play Joy-giggles had me fit to be tied.

The game has morphed a little bit, such that the phrase "I love you so much!" causes even more delight than the nigh-night.

Listen to the Joy! (it's an mp3 file, about a minute long)

OK, that's about it for me this evening. Nigh-night!

Wednesday, November 24, 2010

Product Hits & Misses: Big Girl Bed Edition

Monday night marked an important milestone in our family.

It was the first time EVER that all of us slept on adult-size beds!

Ever since Joy first climbed out of her crib, long time since, we've been using one form of tent or another to keep her safe during night-times and rest-times. She doesn't protest the enclosure at all -- I think it makes her feel safe too -- but if it's not there, she's up and about in a flash. Won't stay still long enough to have any chance at sleep, and her bedroom is not currently safe to be up-and-about in the middle of the night. (We're having some modifications done. But still.)

I wrote about tented products in my very first Product Hits and Misses post two years ago. Crib tent from Tots-in-Mind was a huge hit, making the crib usable all the way up to age 6 and a half! Pack-n-play tent was helpful but fiddly, making overnight travel possible but it always took such a long time to set up, plus it's definitely got a size limit to it. The PeaPod Plus travel bed, which took the place of the Pack-n-Play tent, was an astonishingly fine find. Good up to age 6 depending on kid-size, this portable tent sets up in one springy motion (though you do have to pump up the little air mattress to insert in the base separately). It folds away with nearly equal ease. We've used this for both travel and out-of-home napping for two years, at daycare and now at kindergarten. Amazing product.

Less amazing was the Pacific Play Tents Secret Castle Twin Bed Tent. This product fit over a twin mattress, and we'd hoped that it might serve a containment purpose for Joy with a few modifications (for example, the front door zipper only went top-to-bottom, but the base of the door was open, so I tried to modify that with snaps.) Not only could Joy get out easily, but the tent was poorly ventilated and also wasn't well-set-up for bedding. Big miss, alas.

Well, since we did that product search two years ago, a new invention has come on the scene. May I present: the Nickel Bed Tent from Ready, Set, Bloom LLC.

Nickel Bed Tent from Ready, Set, Bloom
This parent-invented product came about due to the needs of a youngster with autism (named Nick, hence the Nickel Bed.) It's sized for a twin mattress like the play tent I just mentioned, but unlike the play tent, with the Nickel Bed you insert the mattress INTO the tent, so you can put a full set of bedding on it. The tent has great ventilation, and zippers open on three sides: two long sides plus one end. It also comes with little carabiners for hooking the zippers together, assuming you don't want them to be unzipped from the inside.

Joy loves her new tent. She popped right in with no trouble at all, snuggled the familiar blankets, went right to sleep. Two nights now, no troubles. We've started with an air mattress, but a "real" mattress is on order and with any luck will be able to pick it up today. Rose is a little bit envious, but she got to move to her own room with a queen-size platform bed some time ago, so I think she'll deal.

The tent is proving popular enough to keep selling out. It was on back-order when we discovered it, and is now on back-order again. The inventors/proprietors of Ready, Set, Bloom have been making tweaks to improve the product with each new batch from the factory, so the tent is apparently still a work in progress. The price is good: the current iteration sells for $139.99 (I think we paid $125). Compare that to a hospital-bed type enclosure!! One thing I really appreciated was being able to follow the company on Facebook, thus getting the inside scoop on product updates and shipping updates and such.

While this product is a huge hit with us, we've also found a few things that could use improvement.

The tent is, unfortunately, a bit of a challenge to set up. The tent poles have square-cut ends that don't slide particularly easily into the tent-fabric channels. The four main poles, instead of starting out straight and bending in the process (like most tent-poles these days do), are actually curved aluminum, probably more sturdy but also a little more finicky to put together and thread through. The set-up instructions seemed to refer to a previous iteration of the product, referencing straight poles of three different lengths when actually there are two matching short straight poles and then four matching curved poles -- confusing at first!

I do believe I'm spoiled by the "spring-right-out-of-the-bag" set-up of the PeaPod Plus. I could wish for a similar set-up in a large size product! though the PeaPod has an oval footprint and requires its own custom inflatable mattress, while the Nickel Bed Tent accommodates a standard twin mattress & bedding, and therefore can fit a twin-bed frame -- it has straps at the base of the tent to fasten onto a frame if you're using one. We'll likely travel with the PeaPod for a little while yet, as long as we can, due to the differential in set-up ease. When she outgrows that, we'll have the Nickel Bed Tent and air mattress, such that overnight travel will still be possible. For that awesome benefit, we can overlook a little bit of set-up time.

The fact that the zippers are made to attach together also technically makes the Nickel Bed a form of restraint. So we couldn't spend Medicare Waiver funds on it -- though if we'd needed a hospital-ish bed, we could have accessed that funding to the tune of a couple thousand. Fascinating how things work, or don't, sometimes.

All told, Joy's new Nickel Bed is a huge step forward, and I salute the inventors for seeing the need in their own lives and making their solution available to the world as well!

Monday, November 22, 2010

Was It, Or Wasn't It?

Saturday night I sat with Joy on the couch, helping her brush her teeth as per our bedtime routine. Joy was very tired, drifting toward sleep. Then all of a sudden, her legs made a swift jerking motion.

Any other kid, and my first thought would be that it was the kind of jerk-awake thing that happens as sleep threatens to overtake you. But since it's Joy -- first thought was: seizure?!?

I asked JoyDad if he'd seen that jerky motion, and what it looked like to him. No, he'd been looking the other way... but that reminded him, at snacktime earlier in the day, Joy had zoned out for a few seconds. It felt somehow beyond just lost-in-thought, really seemed "not there." And he'd briefly thought: seizure?!? but then she was back and it slipped his mind until my question.

So, was it or wasn't it?

And, if it was, what was it about?

If it was, we've got several potential culprits to consider.

One thought is that she's been growing like a weed, and it's been a long time since we upped her seizure meds (no change in dose since the seizures stopped over two years ago.)

Another thought is the whole thing about the ramifications of switching between manufacturers in the use of generic epilepsy drugs. Since I wrote about the issue in July, our drugstore has switched manufacturers on that particular medication every time we have renewed that prescription. Every single $*#&% time! And we cracked open the newest bottle from the latest manufacturer just a few days ago.

Yet a third thought is the Abilify. Yes, even though I said I wasn't going to tell you, I'm telling you now. We started a couple of weeks ago and it has not gone as we hoped, which is an whole 'nother post in and of itself. But she's still on it as of this writing. More important to today's reflections is that Abilify does have a seizure-caution in the package-insert, because one person did start having seizures during the clinical trial, which could easily have been pure chance due to the population -- or not. We did get the OK to start Abilify from Joy's pediatric neurologist, who didn't think it was likely to change her seizure threshold. But Joy has proven to be unusually sensitive to Abilify in a number of ways, even at half the dose of the smallest pill.

So maybe it was. But maybe it wasn't. We didn't see anything at all seizure-ish on Sunday.

For now, we're watching and waiting. And hoping and praying.

We'd love it if you'd join us in the hope-and-pray part.

Sunday, August 29, 2010

Twinkle, Twinkle

A bedtime song...

Twinkle at MySpaceFileHosting.com
Twinkle.mp3

You'll have to click again on the "Twinkle" link on the new page that appears...

Goodnight, everyone!

Thursday, July 31, 2008

Rock-a-bye Joy

There's another very important routine to write about tonight -- the bedtime routine.

Bath is generally every other night, but the rest is very predictable: first, I install the double-diaper and the jammies. Then JoyDad gets out the seizure meds, four chewable pills and one oral syringe (she's very good about taking them, thank goodness!) Then some practice with drinking water from an open cup, to wash it all down.

Then I get another turn, holding Joy across my lap on the couch to brush her teeth. She's gotten quite good about letting me get in there with a little toothbrush and toddler toothpaste, though sometimes she shows a bit of displeasure by biting on the bristles! Then after I've done a reasonable job, I put the brush into her hand. "Here's 'one'," I say, and she takes several swipes at her teeth and tries to give the brush back. "Here's 'two'," comes next, and maybe a single swipe. "Oh, do better," I cajole, helping her swipe a bit more. Then, "Here's 'three'," and if she makes a good effort, toothbrushing for the evening is done.

Then it's JoyDad's turn once more. He gets to cradle Joy in the livingroom rocking chair, while I hang out on the couch with Rose for some bedtime reading.

"Rock-a-bye Joy, on the treetop,
when the wind blows..."
and then he pauses and waits. We've been doing this for years, and Joy had gotten quite good at blowing a bit of air between her lips. Then for several disappointing months, it disappeared, but lately it's back again! Joy says, "Whfff!"
"Joy will rock.
When the bough breaks..." another pause. Joy says, "Cccckkh!" for the sound of the breaking branch.
"Joy will fall,
and down will come Joy, cradle and..." pause pause pause... Joy concludes, "Ahhh!"


Next comes "Twinkle, twinkle" with more pauses for Joy's input. And then JoyDad talks softly with her about the day, and reviews things she did and saw. When she's had enough, she tells him "bye-bye!" (which at one point was "nigh-nigh!" but has since morphed.)

When it's "bye-bye" time, he brings her around for kisses: one from JoyMama, one from Rose, then one (or several) from Daddy himself. Then it's off to zip her into her tented crib, usually for an uninterrupted night.

Sweet dreams, sweet Joy!

P.S. As I was contemplating writing about Joy's bedtime, I became aware of two other lovely recent posts on bedtime routines/rituals, one from rhemashope that led me to another from jess wilson. Blessings upon all our sleeping kiddos...