I'd like to share another snippet of the conversation with Joy's excellent primary care doctor, from the appointment at which we reversed course on the surgery.
After I had recounted several aspects of the wonderful new developmental stuff that we've been seeing with Joy, he asked me a question. I don't remember his exact words, but the sense was: Why do you think this is happening? What's the cause, do you suppose? To what can we attribute this?
My answer was along the lines of: well, we don't really know. We haven't really tried anything new. Maybe it has something to do with springtime. Maybe we've just finally had the seizures under control long enough. Also all the good work we've been doing with intensive therapy -- and, of course, she's growing up!
He affirmed my assessment of the situation.
(Interesting to think that it if it had been "neurotypical" Rose who'd had a huge developmental spurt, nobody probably would have even thought to ask the question...)
Now just think how different that assessment might have been if we had decided in, say, February to start Joy on the GFCF diet. Or hyperbaric oxygen therapy. Or any one of the therapies from the "alternative intervention assignment" we did in LEND seminar.
We might then consider Joy living proof of the miracle powers of whatever-therapy, even though all the gains would have happened anyway.
This thought isn't original with me. I've cribbed it from Viktoria at Conductive Upbringing, who recently told such a story about India, a lovely young lady who has cerebral palsy. Recently and unexpectedly, with no new therapy to attribute it to, India suddenly grabbed and slurped an entire glass of pink-milk through a straw, where previously she'd demonstrated no willingness or ability to drink so much, so unassisted.
Viktoria tells this story in a well-documented, evidence-based, thoughtful post about the hyping of stem-cell therapy as a cure for cerebral palsy. In previous posts she took on hyperbaric oxygen therapy (yes, the purveyors of HBOT would have you believe that it works wonders for CP as well as autism), and magnetic therapy.
Fortunately, since India (like Joy) was not receiving any such therapy at the time, we can celebrate the amazing powers of human development. What miracles we are, every one of us, when you come to think about it!